Fabry Ireland

Welcome to the Fabry Ireland website.

Fabry Ireland has been set up as a voluntary patient group with the aim of providing access to independent information about Fabry disease to patients, families and clinicians, and promoting awareness and recognition of this rare condition in Ireland. Going forward, Fabry Ireland also hopes to be able to provide a platform whereby individual and collective patient concerns can be voiced, and to assist in supporting independent research to improve overall patient wellbeing.

These objectives are all intended to go some way toward providing equality in terms of access to treatment for Fabry patients within the Irish healthcare system.






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